Saturday, 5 March 2016

Diabetes Uk advice on Neuropathy

Wednesday, 2 March 2016

started a new Boxing blog

http://armchairfightfan.blogspot.co.uk/

and so as a massive boxing fan i have decided more for me and my sanity than anything else to pull in all the sites that i visit onto one page/blog/site for ease of use, for me just to click on. i will also be putting my wimpy arse view on how i see a fight, so if you want to take a look please do if not then no biggy thats all folks...
oh fyi... still alive ... still on a pump... still got neuropathy... erm apart from that all is good..

www.armchairfightfan.blogspot.co.uk
http://armchairfightfan.blogspot.co.uk/

www.armchairfightfan.co.uk

Friday, 5 July 2013

30,000 hits

just reached the 30,000 hits mark on the blog... chuffed to bits...(as my dad would say) x

Monday, 24 June 2013

Diabetes research survey

Had a request from a student doing research into health psychology and diabetes to complete a survey it didnt take long and if it helps somewhere along the line... here is the link if you would like to complete it as well.
http://www.surveymonkey.com/s/important-diabetes-survey

ta

Tuesday, 14 May 2013

The blog is back!!

the blog has been reinstated ... it had been deleted due to "automatic spam detection bots" from blogger... it was hacked and had a few adverts and stuff put on it.. anyway it is back so you can look at my ugly mug again..xx;)

Friday, 2 November 2012

Movember .... growing a tash to raise money

here is a link you would like to sponsor me to keep growing my thick tash for the month of november....all money going to mens health...
http://uk.movember.com/mospace/


Sunday, 15 July 2012

Great weekend but bad sugars

It's tough sometimes... Had a great weekend seeing the folks ... Has and stu swimming the Bournemouth to boscombe pier swim ... Bit of boxing ... Seeing the boys...
But....
My bloody sugars!!!! So up and down... And highs to me are as bad as when it is low... I have issues with sweating withe the neuropathy ... So if high ... I tend to get a very very sweaty back n front...not nice to see... But not nice to feel... I don't mean a little bead I mean inbred to change my top after an hour of putting on... Very bloated stomach on sat evening after watching the hate fight.. So sleep happened around 4/5 this morning... Then up to see the boys stuart and Jason do the annual Bournemouth to boscombe pier swim.. Although justb before i left I caught the canular ... Thinking I had pulled it out .. So spent the next couple of hours thinking if i was gonna be in keystones or not.. Anyway ... Enough moaning ... Imam boring myself now too...

P.s don't ask me how i am
Feeling lol ... Just say oh lovely weather saves on the ear ache of oh erm well lol .... X:)

Friday, 13 July 2012

One touch verio IQ

Just received another blood tester ... The One Touch Verio IQ ... Quite impressed at fist glance ... Looks good ... Easy to use ... Rechargeable ... Great case ... With post a video later ... And also the cons on the iBG STar tester ... Not as practical as what I had 1st thought ... I have gone through so many testers but always resort back to the one touch ultra which I was 1st given when I was diagnosed 5 yrs ago ... Will this be the one that sends the one touch into retirement !

Sunday, 8 July 2012

My 1st video....searching for an answer... before facebook before the online d life!

male health online magazine

http://www.malehealth.co.uk/node/19602
couple of yrs ago this online mag asked for the story.... but is a great site for other issues too....

diabetes power

http://www.diabetespower.org.uk/index.php

a site run by my friend Angela... you have to look at the site to see how amazing it is... run by a Mom with a passion to make a difference,,,, when i grow up i want to like Angela!! x

top 10 uk blog sites as voted by cision

check out my and the other top 10 diabetic blogs in the uk...

Trigeminal Neuralgia

The pain in my cheeks when I eat or even just before I eat has a name .. It's called trigeminal neuralgia here is a link to a site that will explain more about it Can be very painful even only for a second or 2 but very frustrating... Need to know more then follow the link x

Diabetic Neuropathy whats it all about hey!: Nursing Course Online Explains LADA

Diabetic Neuropathy whats it all about hey!: Nursing Course Online Explains LADA: Latent Autoimmune Diabetes of Adulthood (LADA) is related to Type 2 diabetes but has some important differences. When someone takes a nursi...

insulin pump

DVLA guidelines

FYI information on the DVLA guidlines..

Thursday, 3 May 2012

Social networking and hospital

I was thinking back to my long stay in hospital 5yrs ago... Although seems like yesterday!!! There was no Facebook or social networking really ... You had your visitor and that was pretty much it unless to was texting someone .. And seem to recall it was a lot stricter then than it has been recently ...
I have been on Facebook not stop posting bits and bobs.. Probably annoying everyone on my news feed.. But it has been great for a few reasons..
Helps keep friends and family updated on how I am my folks live in Birmingham so aren't able to come and see me
Helps pass the time Boredom can be horrible in hospital and you can feel very alone so having conversations on the Internet with your friends and family make you feel they are there
Therapy I think it's good to help vent yourself than keep it all pent up .. And it's always nice to Hear the support from those closet to you ..soo big thumbs up from me for the Internet social networking sites and your hospital stay!!!

The. 1st part of the hospital visit

Well what can I say .... Have had a very interesting few days in hospital ... Firstly on Sunday i had an appointment in the out of hours to see someone at 6 ... Didn't get seen until 6.45 ... Then I was told I needed to be seen by a doctor ... So was taken to a&e where I was told I would be transferred to a ward or something... Ok no problem ... About 8.30 came and Carli and started to wonder why but was taking so long so Carli went to reception and they looked into it ... Yep someone will be coming ... An hour later still no joy ... So we looks over they caught our attention and then after about 20 mins or so someone can over and said well we don't know how long you will be could be another couple of hours... By this time it was nearly 10 pm... I had only eaten some toast all day as I felt poorly .. The receptionist was brilliant she offered me food and gave me a sandwich drink and salad.. And she took us into a relatives holding room which was Warmer and comfy ...
I would like to point out that pretty much all the staff I came across have been so unbelievably friendly and caring.. Even under so much stress and pressure.
We then waited another maybe 20 mins and I was taken to a bed and assessed the time was now about 11pm ...

Monday, 30 April 2012

Bad toe

So as I posted a while back I cut my big toe ... And have looked after it or so i thought ... Until Monday just gone ... It stated to hurt and swelled up ... So rang docs got antibiotics and took them as directed ... 4 times a day ... Sugars were ok ... But didn't seem to be getting much better ... Fri evening sat comes and the pain is pretty bad ... Snd my left foot is changing colour ... Not good ... So before it got any eorse went to the hospital ... And on a Sunday evening ain't the best of ideas but has to be done ... After waiting for 5 hours ... Got checked in and on iv antibiotics ... See even if you follow eat you are told ... You can't always prevent infections ... I ain't no saint but I pretty much followed the book on this one and still ended up here ... And oh how I love hospital beds.... And the quietness ... Especially on the a&e ward !!!! Tbc....

Thursday, 22 March 2012

Lump in my throat .....

I won't lie it's been a tough few months.... Had alot of down days... And when I write this my stomach is feeling bad... But I had this email and makes me feel a bit more motivated to get back in the saddle again ...

Dear Lee,

I wanted to write to thank you.

About a year ago you were posting insulin pump information on the diabetes facebook page. You answered a few questions that I had, and inspired me to continue 'fighting' to get approval for a pump. Well that approval came through at the beginning of this year, and last week I started on the Medtronic Paradigm Veo pump - and it is brilliant!!! It will take a lot of work and patience to get it set up right, but that is work that I am more than willing to do.

I am so pleased that I have this opportunity in my 'diabetic life' - I have been diabetic since 1979 - and I wanted to thank you for your help and inspiration.

I am not even certain that you will see this email. But I really hope you will.

With very best wishes,
Amanda
xx

Tuesday, 13 March 2012

My sis

When we were kids we would argue like cat n dog ... But as I know now mostly it was down to me... As the short tempered guy person I am... But she was always there for me .... She will always tell it to me straight .... As I will her... She put me up ... Gave me money ... Never judged me... Questioned me...my sister and Matt have always been there for me and us all....
I love the boys like they are my own...and would do anything for them..

Wednesday, 29 February 2012

Pump issues

So I cut my toe last night, now is the time to keep my sugars in check... So I wake this morning feeling bad and they are 24!!! ... Wtf... So I bolus ... And here the beep no delivery after just 0.2 of a unit ... After several attempts still says the same thing ... Panic... Rewind it prime it ... Phew all seems ok... Lay down and fall back to sleep ... Wake and sugars still 20 .... Oh dear.... Same beeps and non delivery... So time to call hospital .... They tell me to call Medtronic ... Who after a few questions realised what the problem was... I changed the vile a couple of days ago but took a shower straight away .... And the new sight came loose so I put the line into the old site....
Basically it wasn't the pump it was me ...I should have made a fresh site not use the old one ....
So feeling crappy as they have been so high ...
Not the best of days...

heads shoulders feet n toes

just cut mt big toe.... now normally... there is no issue..... normally you feel it.... normally you dont have little panic thinking.... oh am gonna loose my toe!!!!...drama queen hell yes...... could it happen ... hell yes......so somtimes its ok to be a little bit of a a drama queen..... dont you think???....

Friday, 24 February 2012

Guts

Sometimes I feel like I want to rip my stomach out .... Not been a good day !!!!

Monday, 20 February 2012

Friday, 17 February 2012

Media volunteer

I was recently asked to do answer a few questions for diabetes uk about being a media volunteer... Thought I would post my answers on here ... It may help you if you wish to have your story told or points listened to
I started as a media volunteer about 3 years ago now....
I wanted to try and raise the awareness of type 1 and the serious complications that come if not diagnosed in time, or you neglect and push your diabetes into a corner and ignore it. I started a blog when I was 1st diagnosed with the type 1 and neuropathy, as at the time I could not find any information about my complications, so it was a way of trying to reach others and try to connect with them to help understand how to deal with it all. It was also a way for me to vent my frustrations whenever I was feeling down. The more I wrote the more views I had and the more feedback and messages people sent me, and the general theme was that of feeling alone so I thought as a media volunteer I could raise the profile of neuroapthy.
I have had various magazine interviews, have been in balance magazine, I a food related magazine, an online men's health magazinemand more recently was interviewed for Diabetes Forecast Magazine the the USA. I have been involved with the user involvement programme so have been privileged to attend NHS Diabetes programme board, which makes decisions on the future of Diabetes in the UK which is chaired by Dr Rowan Hillson MBE, so have been interviewed on how service users can make a difference.
My highlights being a media volunteer have been to be interviewed for BBC south today who ran a story about the complications of Type 1 Diabetes as I was completing a fundraiser / awareness day in 2010 I was also interviewed but the local radio station and in the local paper promoting the event. It was for me what I had been striving for since I was diagnosed 2'yrs previously... So helped raise the awareness but also on a personal level helped me achieve a goal which I had set while in my hospital bed back in 2007...the media team were amazing in their efforts I helping me.
As a media volunteer I feel you just need to be confident, and clear in how you come across in an interview. Do,not be afraid or intimidated by the situation and remember what you are doing is helping others out to.. If its a radio interview or an interview for a magazine have some notes handy as sometimes you may forget to say all that you wAnted to, try and be a to the point as you can ....people don't like to hear a waffler...(like me) ....
Keep a record of whAt you do, you never know how it will help you in the future wether it be in a career, or on those diabetic down days which we all get to give yourself a boast.
I think that being a media volunteer and helped me in my personal journey to content with others with compications and type1, also being able to put a face to the condition and as a man encourage other young men talk about problems like erectile dysfunction related to diabetes, and show that there is help out there and it's ok to talk about it.

Diabetes will not go away, you can't fight or ignore it, once you embrace it and make it apart of your life you will realise you are not alone there are plenty of others out there that will and want to help, talking and communication is defiantly the key.
I would encourage anybody who wants to make a difference to pick up the phone or send an email to the diabetes uk team, and help them raise awareness of Diabetes, but also help you with your journey along the way.

Wednesday, 11 January 2012

depresion

listen......... i have said a thousand times about this........the biggest men.... that harder the are.... it makes no difference..... diabetes..... its a fact.... you WILL get depressed... book it in..... expect it.... you try so hard to control it.... you follow the rules... carb count.... and whatever..... but to me it WILL happen... and the only way is is talk about it..... please guys n gals..... talk... talk .... talk..... sometimes i wish i followed my own advice..... xxxxx

Sunday, 8 January 2012

hyperglycemia/high blood sugar/not my fault/..panic..

the pump is fab but... if there is an issue with it it all goes downhill very very fast... when you are on injections... you have 2 types... short acting and long acting... i.e a baseline... but on the pump... its just one... the short acting that relies on the pump delivering insulin as its told.... anyway... for some reason or another.... i didnt get enough of mine today..... i dont want to go in detail as it will not make sense.. i will do a video... i just could could not understand why i was putting in so so so much insulin and it making no difference.... i am going to again do a vid to show how much i think i put in....anyway all good now... but.... geez.... heart goes so fast... then stops.... skips a beat.... mouth feels like ermmmm...tin???? eyes just close.... you just want to sleep... seeing things.... but in my mind i was like i havent done anything wrong.... i followed the rules.... again.... and again... but nothin seemed to work.... i ran a marathon... on my sofa...... thats how it feels.... actually.... i drank a bottle of vodka..... but didnt!!!!

Monday, 19 December 2011

that time again....depression!!!

every now and then it pops up.. and you dont know why... and how to cope with it... you take it out on the ones closet to you... and at the time it seems like the world is against you and what is the point in everything... i remember why back when i was first diagnosed with type 1... but more so the pain or the neuropathy i thought i was being punished for something.. that i was such a bad person that i was to be tortured for this.... i guess i have alwayas had a temper... my sister can vouch for that as as kids i used to hit her all the time... there has always been 2 sides to me i think... the laid back... loves to be around people.. centre of attention... funny witty charming.. modest!!... but then there is the moody short tempered... jealous... lonesome one... i am in to minds as to post this or not as there are some folks that have only seen the "good" lee lol... but i the reason i started this was to help me understand what is going on... and as a way of looking back in a few months/years and seeing reminding me of how bad it was... i know it will get better.... it has too.... like many other people i know i am good at giving advice to others but not following my own... and as a dear friend said to me recently (as i had told that person many times before) ONLY YOU CAN SORT THIS OUT... which is that same as in most things... i can talk about sugar control in the same breath.. pain control .... i guess we all need to take a long hard look at ourselves every so often... yep my life has changed dramaticly over the past few years... but it is up to me to make my future work for me and not think it will change itself ... so my JERRY SPRINGER sum up lol... dont ignore it... dont try and deal with it yourself... you are not alone... talk.. listen... act... do.... take care of yourself and each other...;)... me

Monday, 12 December 2011

the effects

really.... i would be a fool to say that mt experiences over the last few years have not affected me... i do put them aside... or block them out,... but i dont think there is a day that goes by when i i dont think about what it was like when i was "normal".... its the winter season and i guess we all get down during these times.... i know i have come along way ..... and there is so so much more i want to do..... 2012.... time to look forward not back.... !